Implementing electronic informed consent in rare disease genomics
www.nature.com
Dec. 29, 2025, 12:56 p.m.
Electronic consent systems hold significant promise for improving the informed consent process, particularly in rare disease research. By making the process more accessible, transparent, and user-friendly, eConsent platforms can enhance participant understanding, encourage data sharing, and streamline administrative tasks. The recommendations discussed, i.e. enhancing usability, improving communication, and strengthening data accuracy, are essential steps in ensuring that the consent process is ethical, robust and effective.